Hardback
April 20, 2006
9780801883255
English
264
8.00 Inches (US)
5.00 Inches (US)
.75 Pounds (US)
.75 Pounds (US)
$69.00 USD, £51.00 GBP
v2.1 Reference
Paperback / softback
April 20, 2006
9780801883262
English
264
8.00 Inches (US)
5.00 Inches (US)
.6 Pounds (US)
.6 Pounds (US)
$27.95 USD, £20.50 GBP
v2.1 Reference
Electronic book text
April 1, 2008
9780801889363
English
264
8.00 Inches (US)
5.00 Inches (US)
$27.95 USD, £20.50 GBP
v2.1 Reference

The Troubled Dream of Genetic Medicine

Ethnicity and Innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease

Why do racial and ethnic controversies become attached, as they often do, to discussions of modern genetics? How do theories about genetic difference become entangled with political debates about cultural and group differences in America? Such issues are a conspicuous part of the histories of three hereditary diseases: Tay-Sachs, commonly identified with Jewish Americans; cystic fibrosis, often labeled a "Caucasian" disease; and sickle cell disease, widely associated with African Americans.

In this captivating account, historians Keith Wailoo and Stephen Pemberton reveal how these diseases—fraught with ethnic and racial meanings for many Americans—became objects of biological fascination and crucibles of social debate. Peering behind the headlines of breakthrough treatments and coming cures, they tell a complex story: about different kinds of suffering and faith, about unequal access to the promises and perils of modern medicine, and about how Americans consume innovation and how they come to believe in, or resist, the notion of imminent medical breakthroughs.

With Tay-Sachs, cystic fibrosis, and sickle cell disease as a powerful backdrop, the authors provide a glimpse into a diverse America where racial ideologies, cultural politics, and conflicting beliefs about the power of genetics shape disparate health care expectations and experiences.

About the Authors

Keith Wailoo is the Townsend Martin Professor of History and Public Affairs and Vice Dean of the Woodrow Wilson School of Public and International Affairs at Princeton University. He is the author of Drawing Blood: Technology and Disease Identity in Twentieth-Century America, Pain: A Political History, and Dying in the City of the Blues: Sickle Cell Anemia and the Politics of Race and Health. Stephen Pemberton is an assistant professor in the Federated Department of History at the New Jersey Institute of Technology and Rutgers University.

Reviews

"Concise and well-argued . . . essential reading for anyone interested in genetics, disease, and the meaning of race."—Science

"Practitioners of the future will have to take these separate histories into account as this new era unfolds."—Doris Teichler Zallen, PhD, JAMA

"Fascinating."—Jackie Leach Scully, Social History of Medicine

"Perfectly suited for use in teaching the history of medicine and health . . . At once concise, readable, and demanding in its parsimony. It should not be missed by anyone who cares about the emerging shape of health care in the age of genomic medicine."—Christopher Crenner, Journal of the History of Medicine

"The book deserves to be read by a large public—and in particular by those who are in charge of, or concerned with, decisions about health politics."—Michel Morange, Isis

"The Troubled Dream of Genetic Medicine brings into focus intriguing concepts at the intersection of science and society. . . This book ought to encourage others to produce biosocial histories of this kind."—Abidemi Adegbola, M.D., Journal of the American Academy of Child and Adolescent Psychiatry

"The authors are two historians of health care policy and politics, and their well-researched account of the 'genetic revolution' reveals drama and intrigue rarely seen in descriptions of medical history."—PsycCRITIQUES

"No book brings together contemporary understandings of genetics as a social rather than a biological project as nicely as The Troubled Dream of Genetic Medicine. This book, accessible to both scholars and general readers, greatly contributes to our understanding of the ways in which concepts developed in genetic medicine influence people's definitions of ethnicity and race."—Kaja Finkler, University of North Carolina at Chapel Hill

The Johns Hopkins University Press

9780801883255 : the-troubled-dream-of-genetic-medicine-wailoo-pemberton
Hardback
264 Pages
$69.00 USD
9780801883262 : the-troubled-dream-of-genetic-medicine-wailoo-pemberton
Paperback / softback
264 Pages
$27.95 USD
9780801889363 : the-troubled-dream-of-genetic-medicine-wailoo-pemberton
Electronic book text
264 Pages
$27.95 USD

Other Titles by Keith Wailoo

Pain

Keith Wailoo
Jul 2015 - Johns Hopkins University Press
$24.95 USD - Electronic book text
$24.95 USD - Paperback / softback

Three Shots at Prevention

edited by Keith Wailoo, Julie Livingston, Steven Epstein, Robert Aronowitz
Dec 2010 - The Johns Hopkins University Press
$69.00 USD - Hardback
$33.00 USD - Paperback / softback
$33.00 USD - Electronic book text

Drawing Blood

Keith Wailoo
Feb 1999 - The Johns Hopkins University Press
$28.00 USD - Paperback / softback

Other Titles by Stephen Pemberton

The Bleeding Disease

Stephen Pemberton
May 2011 - Johns Hopkins University Press
$53.00 USD - Hardback
$53.00 USD - Electronic book text

Other Titles in MEDICAL / History

Behind the Mirror

Jeanne Simons - as told to and with commentary by Sabine Oishi, PhD - foreword and afterword by James C. Harris, MD
Apr 2021 - Johns Hopkins University Press
$34.95 USD - Paperback / softback
$34.95 USD - Electronic book text

The Narcotic Farm

Nancy D. Campbell
Mar 2021 - South Limestone, an imprint of University Press of Kentucky
$27.95 USD - Hardback
$27.95 USD - Electronic book text
$27.95 USD - Electronic book text

Riverblindness in Africa

Bruce Benton - foreword by James D. Wolfensohn
Dec 2020 - Johns Hopkins University Press
$49.95 USD - Hardback
$49.95 USD - Electronic book text

Other Titles in History of medicine

Behind the Mirror

Jeanne Simons - as told to and with commentary by Sabine Oishi, PhD - foreword and afterword by James C. Harris, MD
Apr 2021 - Johns Hopkins University Press
$34.95 USD - Paperback / softback
$34.95 USD - Electronic book text

Riverblindness in Africa

Bruce Benton - foreword by James D. Wolfensohn
Dec 2020 - Johns Hopkins University Press
$49.95 USD - Hardback
$49.95 USD - Electronic book text

In Search of Sexual Health

Elliott Bowen
Sep 2020 - Johns Hopkins University Press
$49.95 USD - Hardback
$49.95 USD - Electronic book text