Paperback / softback
November 9, 2017
9781421423906
English
160
9 b&w illus.
9.00 Inches (US)
6.00 Inches (US)
.6 Pounds (US)
.6 Pounds (US)
$32.00 USD, £23.50 GBP
v2.1 Reference
Electronic book text
January 12, 2018
9781421423913
9781421423906
English
160
9 b&w illus.
9.00 Inches (US)
6.00 Inches (US)
$32.00 USD, £23.50 GBP
v2.1 Reference

Living with HHT

Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia

Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess.

Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible.

Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.

About the Author

Sara Palmer, PhD, is a psychologist and an assistant professor in the Department of Physical Medicine and Rehabilitation at Johns Hopkins University School of Medicine. She is the coauthor of Spinal Cord Injury: A Guide for Living; When Your Spouse Has a Stroke: Caring for Your Partner, Yourself, and Your Relationship; and Just One of the Kids: Raising a Resilient Family When One of Your Children Has a Physical Disability.

Reviews

"This book is an excellent basic overview of HHT. It describes the condition, the difficulties often found in diagnosis, current and potential future treatments, as well as emotional and social effects for both patients and their families along with coping strategies. Throughout, the ability to live well with knowledge and appropriate care is emphasized."—Jeffrey Pollak, MD, Katharine Henderson, MS, Department of Radiology and Biomedical Imaging, Yale School of Medicine, New Haven, CT, Journal of Radiology Nursing

"A must-read for patients and health care professionals seeking information about HHT, an uncommon disease diagnosis. Families will find answers in this thoroughly researched resource, learn about HHT's psychological impact, and discover coping strategies for living a long and happy life as they navigate their medical journey."—Marianne Clancy, Cure HHT/HHT Foundation International Executive Director

"I strongly recommend this HHT guide to patients, families, and doctors. It provides a wide range of useful information for both the newly diagnosed and veterans. Patient stories give it a refreshing human touch, and the author's profession combined with her personal experience make it a uniquely informative book."—Alyson Abbott Conger, Cure HHT Board Director, person with HHT

"This is an outstanding, informative book. Covering medical, social, and emotional aspects of HHT, this work tackles everything a patient may encounter when living with HHT. In addition to being a valuable resource for patients, all physicians could benefit from research and understanding of this disease. I highly recommend it."—Sally E. Mitchell, MD, Johns Hopkins HHT Center Medical Director

"This book is packed with tons of useful information such as the most effective treatments for nosebleeds and how to deal with insurance companies.  Dr. Palmer cuts through the jargon of HHT to share strategies for the diagnosis and management of HHT—helping to convert disability and fear into physical treatment, emotional well-being, and hope."—James Gossage, MD, Cure HHT Medical Director

The Johns Hopkins University Press

9781421423906 : living-with-hht-palmer
Paperback / softback
160 Pages
$32.00 USD
9781421423913 : living-with-hht-palmer
Electronic book text
160 Pages
$32.00 USD

Other Titles by Sara Palmer

Just One of the Kids

Kay Harris Kriegsman, Sara Palmer
Apr 2013 - The Johns Hopkins University Press
$54.00 USD - Hardback
$24.00 USD - Paperback / softback
$24.00 USD - Electronic book text

When Your Spouse Has a Stroke

Sara Palmer, Jeffrey B. Palmer, M.D.
Jun 2011 - The Johns Hopkins University Press
$50.00 USD - Hardback
$24.00 USD - Paperback / softback
$24.00 USD - Electronic book text

Spinal Cord Injury, second edition

Sara Palmer, Kay Harris Kriegsman, Jeffrey B. Palmer, M.D.
Apr 2008 - The Johns Hopkins University Press
$50.00 USD - Hardback
$25.00 USD - Electronic book text

Other Titles in HEALTH & FITNESS / Diseases / Genetic

Disorders of Sex Development

Amy B. Wisniewski, Steven D. Chernausek, M.D., Bradley P. Kropp, M.D.
Feb 2012 - The Johns Hopkins University Press
$45.00 USD - Hardback
$25.00 USD - Paperback / softback
$25.00 USD - Electronic book text

Williams-Beuren Syndrome

edited by Colleen A. Morris, M.D., Howard M. Lenhoff, Paul P. Wang, M.D.
Feb 2006 - The Johns Hopkins University Press
$85.00 USD - Hardback

Mendelian Inheritance in Man, twelfth edition

Victor A. McKusick, M.D., with the assistance of Stylianos E. Antonarakis, M.D., D.Sc., Clair A. Francomano, M.D., Orest Hurko, M.D., Alan F. Scott, Moyra Smith, David Valle
Jun 1998 - The Johns Hopkins University Press
$390.00 USD - Hardback

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Prostate Cancer

Neil H. Baum, MD, David F. Mobley, MD, and R. Garrett Key, MD
May 2023 - Johns Hopkins University Press
$49.95 USD - Hardback
$19.95 USD - Paperback / softback
$19.95 USD - Electronic book text

Preparing for the Next Global Outbreak

David C. Pate, MD, JD, and Ted Epperly, MD
Apr 2023 - Johns Hopkins University Press
$39.95 USD - Paperback / softback
$39.95 USD - Electronic book text

Winning with Diabetes

Mark D. Corriere, MD, Rita R. Kalyani, MD, MHS, and Patrick J. Smith - illustrated by Jennifer E. Fairman, CMI, FAMI
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$21.95 USD - Electronic book text
$54.95 USD - Hardback