Living with HHT

"A must-read for patients and health care professionals seeking information about HHT, an uncommon disease diagnosis. Families will find answers in this thoroughly researched resource, learn about HHT's psychological impact, and discover coping strategies for living a long and happy life as they navigate their medical journey."—Marianne Clancy, Cure HHT/HHT Foundation International Executive Director

"I strongly recommend this HHT guide to patients, families, and doctors. It provides a wide range of useful information for both the newly diagnosed and veterans. Patient stories give it a refreshing human touch, and the author's profession combined with her personal experience make it a uniquely informative book."—Alyson Abbott Conger, Cure HHT Board Director, person with HHT

"This is an outstanding, informative book. Covering medical, social, and emotional aspects of HHT, this work tackles everything a patient may encounter when living with HHT. In addition to being a valuable resource for patients, all physicians could benefit from research and understanding of this disease. I highly recommend it."—Sally E. Mitchell, MD, Johns Hopkins HHT Center Medical Director

"This book is packed with tons of useful information such as the most effective treatments for nosebleeds and how to deal with insurance companies.  Dr. Palmer cuts through the jargon of HHT to share strategies for the diagnosis and management of HHT—helping to convert disability and fear into physical treatment, emotional well-being, and hope."—James Gossage, MD, Cure HHT Medical Director