Paperback / softback | |
November 9, 2017 | |
9781421423906 | |
English | |
160 | |
9 b&w illus. | |
9.00 Inches (US) | |
6.00 Inches (US) | |
.6 Pounds (US) | |
.6 Pounds (US) | |
$32.00 USD, £23.50 GBP | |
v2.1 Reference | |
Electronic book text | |
January 12, 2018 | |
9781421423913 | |
9781421423906 | |
English | |
160 | |
9 b&w illus. | |
9.00 Inches (US) | |
6.00 Inches (US) | |
$32.00 USD, £23.50 GBP | |
v2.1 Reference | |
Living with HHT
Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia
Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible.
Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.
About the Author
Reviews
"A must-read for patients and health care professionals seeking information about HHT, an uncommon disease diagnosis. Families will find answers in this thoroughly researched resource, learn about HHT's psychological impact, and discover coping strategies for living a long and happy life as they navigate their medical journey."—Marianne Clancy, Cure HHT/HHT Foundation International Executive Director
"I strongly recommend this HHT guide to patients, families, and doctors. It provides a wide range of useful information for both the newly diagnosed and veterans. Patient stories give it a refreshing human touch, and the author's profession combined with her personal experience make it a uniquely informative book."—Alyson Abbott Conger, Cure HHT Board Director, person with HHT
"This is an outstanding, informative book. Covering medical, social, and emotional aspects of HHT, this work tackles everything a patient may encounter when living with HHT. In addition to being a valuable resource for patients, all physicians could benefit from research and understanding of this disease. I highly recommend it."—Sally E. Mitchell, MD, Johns Hopkins HHT Center Medical Director
"This book is packed with tons of useful information such as the most effective treatments for nosebleeds and how to deal with insurance companies. Dr. Palmer cuts through the jargon of HHT to share strategies for the diagnosis and management of HHT—helping to convert disability and fear into physical treatment, emotional well-being, and hope."—James Gossage, MD, Cure HHT Medical Director
The Johns Hopkins University Press | |
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Paperback / softback | |
November 9, 2017 | |
9781421423906 | |
English | |
160 | |
9 b&w illus. | |
9.00 Inches (US) | |
6.00 Inches (US) | |
.6 Pounds (US) | |
.6 Pounds (US) | |
$32.00 USD, £23.50 GBP | |
v2.1 Reference | |
Electronic book text | |
January 12, 2018 | |
9781421423913 | |
9781421423906 | |
English | |
160 | |
9 b&w illus. | |
9.00 Inches (US) | |
6.00 Inches (US) | |
$32.00 USD, £23.50 GBP | |
v2.1 Reference | |
Other Titles by Sara Palmer
Just One of the Kids
When Your Spouse Has a Stroke
Spinal Cord Injury, second edition
Other Titles in HEALTH & FITNESS / Diseases / Genetic
Disorders of Sex Development
Williams-Beuren Syndrome
Mendelian Inheritance in Man, twelfth edition
Other Titles in Popular medicine & health
Prostate Cancer
Preparing for the Next Global Outbreak
Winning with Diabetes