Electronic book text
April 4, 2023
9781421445724
9781421445717
English
216
57841
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5.50 Inches (US)
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v2.1 Reference
Paperback / softback
April 4, 2023
9781421445984
English
216
57841
8.50 Inches (US)
5.50 Inches (US)
0.57 Inches (US)
$19.95 USD, £15.00 GBP
v2.1 Reference
Hardback
April 4, 2023
9781421445717
English
216
57841
8.50 Inches (US)
5.50 Inches (US)
0.82 Inches (US)
$49.95 USD, £37.00 GBP
v2.1 Reference

Living Well with a Serious Illness

A Guide to Palliative Care for Mind, Body, and Spirit

A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers.

Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care.

Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand

• what palliative care entails
• how to access the support they need when going through a serious illness
• what questions to ask medical professionals
• how to navigate advanced care planning
• definitions of common terminology used with end-of-life planning
• the importance of spiritual care, coping strategies, and emotional support
• how to become an advocate for palliative care

This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit—the core tenet of palliative care.

About the Author

Robin Bennett Kanarek (GREENWICH, CT) is the president of the Kanarek Family Foundation, whose mission is to improve the quality of life for those affected by serious, life-threatening conditions through promoting, integrating, and educating the medical industry and the public about palliative and supportive care in all areas of health care.

Endorsements

"Robin's book is an impassioned plea to advance the availability, access, and use of palliative care services. This book fills a gap. Highly relevant and practical."

- Teresa Hagan Thomas, PhD, RN, University of Pittsburgh

"Robin Kanarek teaches us vital lessons on living life in this important book. We all have to face the fact of our inevitable death, but in the 'mean-while' we hopefully can live a life with meaning in the time we have."

- William Breitbart, MD, DFAPA, FAPOS, Memorial Sloan Kettering Cancer Center

"This book is essential reading for anyone who will live with a serious illness or care for someone with one—which is essentially everyone. Kanarek writes as a mother who shares the loss of her son and has spent three decades sharing her experience with others to support their journeys. It is a book written from the heart and is both a practical guide as well as a deep reflection of how to navigate the challenging, and sacred, time of the end of life."

- Betty Ferrell, PhD, FAAN, FPCN, CHPN, Professor, City of Hope Medical Center

"Robin Kanarek's personal story supports and comforts those who have experienced the sorrowful loss of a child. The expertise she synthesizes to catalyze palliative care and manage grief and loss provides a seminal guide to managing serious illness, for patients, families and healthcare communities."

- Meredith Kazer, Fairfield University Egan School of Nursing & Health Studies

"This compelling story and resource is written with the tenderness and understanding that can only come from a loving mother, passionate nurse, and dedicated educator-advocate. Robin Kanarek gives absolutely all of herself to help us prioritize quality of life while treating serious illness. Her plea—know, ask, demand, educate!"

- Richard J. Umbdenstock, President Emeritus, American Hospital Association
Johns Hopkins University Press
A Johns Hopkins Press Health Book
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